tag:blogger.com,1999:blog-632271667049114881.post2624857741412975736..comments2024-01-05T06:26:39.316-05:00Comments on Baby B and Our FPIES Test Kitchen: So Disappointed. . .music_rxmamahttp://www.blogger.com/profile/17511588806780337510noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-632271667049114881.post-79325342497593250632010-03-18T09:20:36.801-04:002010-03-18T09:20:36.801-04:00Thanks for the support! We are considering paying ...Thanks for the support! We are considering paying out of pocket for an allergist (the hospital won't give us a referral so the insurance won't cover it), but there is the language barrier that makes us a little uncertain (neither my husband or I speak Japanese very well). I have some research on docs that speak a fair amount of English, but after delivering B in a Japanese hospital (the care was phenomenal!) and our experiences with the language barrier at that time, we are a little hesitant.<br />As far as the foods, she does do well with pears already. They are one of her four successful foods, I would just like her to have a few more under her belt, as I am sure we all would for our LOs! :) I will definitely check out that book-- amazon ships to us out here and they are reasonably quick about it! Thanks for the tips!music_rxmamahttps://www.blogger.com/profile/17511588806780337510noreply@blogger.comtag:blogger.com,1999:blog-632271667049114881.post-6190677988423092982010-03-17T16:28:55.000-04:002010-03-17T16:28:55.000-04:00I'm sorry! I feel your pain. I do. The first t...I'm sorry! I feel your pain. I do. The first time I mentioned FPIES to my pediatrician, she said, "Yeah, I've heard of that" and didn't say anything else about it!!! <br />Can you go to an allergist yourself? I just don't think pediatricians know enough, and most of them don't want to take the time to learn. <br />I say write a letter yourself for the ER. There is a book Understanding and Managing Your Child's Food Allergies by Dr. Sicherer that has a sample letter in it your pediatrician can just sign. Do you have access to getting this book? I know you can buy on Amazon. <br />With our move in the middle of everything, I just had to take matters into my own hands. <br />As far as the food trialing...maybe try something like pears that not many kids react to. But, wait until it's been a month or so since her last reaction. (sorry I can't remember how long it's been) Good luck with whatever you decide!!Anonymousnoreply@blogger.com